Primary Caregiver Guidelines

We at Adya Hospice & Palliative Care LLC thank you for the opportunity to assist you with the care of your loved one. We understand the challenges, dedication, and sacrifice this type of care demands from caregivers and families, as well as the mixed emotions it produces. Your care team will go over the progression of the illness, how the needs of your loved one will change over time, and how to respond as these changes take place. Helping you anticipate these changes and implement procedures to manage them will minimize being overwhelmed and decrease feelings of frustration. It is our commitment to empower you as you share your loved ones end of life journey. 

 

TO BE ABLE TO TAKE CARE OF ANOTHER, YOU MUST FIRST TAKE CARE OF YOURSELF

Tips on taking care of yourself:

  • Get rest, when possible (such as taking naps during the day)

  • Exercise and take breaks. Short walks help re-energize the body. Stepping away and focusing on something else helps to re-focus your mind

  • Engage in meditation and relaxation techniques 

  • Avoid skipping meals/Eat regularly and choose nutritious foods. Drink plenty of water.

  • Pay attention to what your body is telling you. Stress, anger, frustration, and fatigue can manifest itself in a variety of physical ways.

  • Continue to engage in activities that bring you joy or help you relax

  • Pamper yourself, especially on difficult days.  Be patient and considerate of yourself.

  • Recognize your limits and avoid unrealistic expectations of yourself

  • Allow others to help you and ask for help when needed

  • Set limits. It's OK to say “no" sometimes

  • Consider joining a caregiver support group

  • Communicate with family and friends

 

Tips on helping loved ones:

  • Allow them to talk, listen without judgment and with only occasional comment

  • Acknowledge and validate their feelings and let them explore ways to express their feelings

  • Avoid taking any negative feelings personally

  • Let them have control over their situation as much as possible; include them in decision making and discussions

  • Let them do as much as they want to and have the energy for, no matter how slow, painful or difficult it seems to you.

  • Don't underestimate or their pains, symptoms and fear. These are real and valid.

  • Talk about subjects you used to discuss together and recount memories shared